An Ol' Broad's Ramblings

Rylee Marlar

1 May 2011, 6:26 am. 7 Comments. Filed under Friends & Family.

2 November 2010 ~ 30 April 2011

Resting in the arms of the Lord.

But Jesus called them unto him, and said, Suffer little children to come unto me, and forbid them not: for of such is the kingdom of God.
Luke 18:16

Added: I had forgotten about this video Brook made, and am adding it, and her comments.

“We found out at 20 wks pregnant Rylee had hydrocephalus. We were first told that she would not live becuase she didn’t have a brain. She was born 6 weeks early and is now almost five months old. We have since learned that she also has a genetic disorder called 3P deletion syndrome that probably has something to do with the hydrocephalus. She has had two surgeries already: shunt and a feeding tube/fundo. She has had many ct scans to show that she only has around 10% of her brain and the doctors can’t give us an expected life span for her. They just tell us to take care of her the best we can. We are so thankful and blessed to have her and know that God is going to allow us to have her as long as He wants. He has a plan and a purpose for her!” – Brook Marlar

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7 Comments »

  1. Chris from Racine. 1 May 2011, 7:15 am

    May God’s peace be with you all.

  2. Dr.D. 1 May 2011, 8:14 am

    May she rest in peace and may light perpetual shine upon her.

  3. cary. 1 May 2011, 9:33 am

    Please accept our most heartfelt condolences.
    May God be with you all.

  4. olbroad. 1 May 2011, 4:36 pm

    How do you deal with the loss of a child?  Came close to losing the Brat when she was 2, but, praise God….she’s still around to drive me nuts.

    A comment Brooke left on her FB page just totally broke my heart:

    I just picked out Rylee’s clothes for the last time. Her clothes are still in the dryer and her bottles need to be washed… Hardest thing I’ve ever done.
  5. Maggie@MaggiesNotebook. 1 May 2011, 5:32 pm

    God bless this sweet young family who did the most they could do for their little girl.

  6. Mark Smith. 1 May 2011, 6:11 pm

    At a times like this we/they have to know that  the family’s lost is Heaven’s gain.

  7. Madalyn. 1 May 2011, 7:53 pm

    God needed another angel so he called Rylee home. My prayers and thoughts for Rylee’s family and loved ones. God Bless.